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Hypermobility and EDS

Is hypermobility stopping you from living a normal life?

Does this describe you?

  • Are you suffering from multiple chronic joint pains?
  • Have you always been super flexibility from when you were younger?
  • Is it stopping you doing the things that you love doing?
  • Do you have hyper-extensible and fragile skin, excessive stretch marks or abnormal scarring?
  • Do you have any gastrointestinal dysfunction, cardiovascular abnormalities as well as pelvic floor weakness and prolapse?
  • Have you been diagnosed with postural tachycardia syndrome (POTS)?
  • Do you suffer chronic fatigue, cognitive impairment and mood disorders? 
  • Are any of these significantly impacting your quality of life?

At Wandsworth physiotherapy and osteopathy our highly experienced physiotherapists treat people just like you and help them get back to what they love doing without the fear of further flare ups of hyper mobility or EDS pain.

Are you hypermobile?

Hypermobility Spectrum Disorders (HSD) and Ehlers-Danlos Syndromes (EDS) collectively represent a spectrum of connective tissue disorders with varying prevalence rates. HSD, characterised by joint hypermobility and associated symptoms, affects approximately 2% of the population, making it seem a relatively uncommon condition. However, the prevalence in orthopaedic and physiotherapy clinics is much greater, being up to 50% of patients. In contrast, Ehlers-Danlos Syndromes, a group of inherited connective tissue disorders, occur less frequently, with an estimated prevalence of 1 in 5,000 individuals.

 

Hypermobile Thumb

 

These disorders exhibit notable demographic patterns, predominantly affecting more women than men, and especially more in Asian and African racial groups. The onset of symptoms often occurs in childhood or adolescence, although diagnosis may be delayed due to under-recognition or misinterpretation of symptoms and do tend to dimmish somewhat with age. Many patients can go years without coming to a diagnosis.

 

Classification and Diagnosis of hypermobility and Ehlers-Danlos Syndrome

 

EDS encompasses 13 distinct types, each characterised by specific genetic mutations and clinical presentations. Among these, Hypermobility EDS (hEDS) and Classical EDS (cEDS) are the most common variants. Diagnosis of EDS requires the fulfilment of criteria outlined in the 2017 International Classification of the Ehlers-Danlos Syndromes, emphasising three domains: joint hypermobility, skin involvement, and systemic manifestations.

 

Domain 1 involves joint hypermobility and is assessed using standardised measures such as the Beighton Score, which evaluates the flexibility of specific joints. The scoring for the Beighton Scale is as follows:

 

1 point on each side:

  • Apposition of the thumb to the flexor aspect of the forearm.
  • Hyperextension of the elbow beyond 10º.
  • Hyperextension of the knee beyond 10º.
  • Passive dorsiflexion of the fifth MCP to 90º.

 

Scoring 1 point”

  • Forward trunk flexion placing hands flat on the floor with knees extended

 

The maximum score is 9 and a positive score children is 6 or more, for adults up to the age of 50 is 5 or more and those over 50 years of age 4 or more. There are problems with this score as it only involves a small number of joints, but it does give an indication. What can also be used is the 5-point hypermobility questionnaire. Ask your patient to answer the following:

  1. Can you/could you place your hands on the floor without bending your knees?
  2. Can you/could you bend your thumb to touch your forearm?
  3. As a child did you amuse your friends by contorting your body into strange shapes or could you do the splits?
  4. As a child or teenager did you dislocate your shoulder or kneecap on more than one occasion?
  5. Do you consider yourself double jointed?

 

Domain 2 involves skin, fascia, the pelvic floor and Marfin like symptoms. This may include hyperextensibility and fragility of the skin, and abnormal scarring. Systemic manifestations encompass a wide range of symptoms, including chronic pain, gastrointestinal dysfunction, and cardiovascular abnormalities as well as pelvic floor weakness and prolapse.

 

Domain 3 involves the absence of any other underlying heritable disorder of connective tissue including other variants of EDS.

 

Meeting criteria across all three domains strengthens the diagnostic accuracy of EDS.

 

Signs and Symptoms of Ehlers-Danlos Syndrome

 

Individuals with EDS often experience a myriad of signs and symptoms, reflecting the multisystem nature of the disorder. Joint hypermobility is a hallmark feature, predisposing individuals to recurrent joint dislocations, subluxations, and chronic musculoskeletal pain. Skin manifestations, such as hyperextensibility and easy bruising, result from abnormalities in collagen production and structure.

 

Beyond musculoskeletal and cutaneous manifestations, EDS can affect various organ systems, leading to gastrointestinal dysfunction, cardiovascular anomalies and postural tachycardia syndrome (POTS), and autonomic dysfunction. Chronic fatigue, cognitive impairment and mood disorders are also common among individuals with EDS, significantly impacting their quality of life.

Ready to Make a Change?

At Wandsworth Physiotherapy & Osteopathy we're focused on getting you out of pain and back to what you love doing, from simply sitting comfortably to playing with your kids, getting back into the gym or being able to run 5k again, our expert Physiotherapists, Podiatrists & Osteopaths are here to help!

 

All appointments are secured with payment. All appointments cancelled within 24 hours of the start time or not attended will not be refunded.

How can Physiotherapy help?

Hypermobility and EDS in children

 

Symptoms can often be picked up in children who have hypermobility including recurrent knee or shoulder dislocations, growing pains, fatigue, poor balance and proprioception, excessively pronated feet and POTS. Very young children may also have delayed developmental milestones. These issues can affect a child’s education and quality of life impacting school attendance and performance, the development of handwriting and reduced physical education and sport participation.

 

Hypermobility in adults

 

Although symptoms do perhaps reduce with age, EDS in adults can lead to pain from premature osteoarthritis, inflammatory joint diseases and osteoporosis as well joint and muscle pain.

 

Physiotherapy Management of Ehlers-Danlos Syndromes

 

Physiotherapy plays a pivotal role in the management of HSD and hEDS, aiming to improve joint stability, reduce pain, and enhance functional capacity. A multidisciplinary approach tailored to individual needs is essential for optimal outcomes. Key physiotherapy interventions include:

 

External support through taping and splinting can provide stability to hypermobile joints, reducing the risk of subluxations and enhancing proprioception. Kinesio taping and custom-made splints are often employed to support vulnerable joints while promoting optimal alignment.

 

Hydrotherapy offers a low-impact environment for exercise, facilitating joint mobilisation, muscle strengthening, and cardiovascular conditioning. The buoyancy of water alleviates gravitational stress on joints, making it particularly beneficial for individuals with hEDS who experience chronic pain and joint instability.

 

Strength exercises are crucial for improving muscle function and joint stability in individuals with HSD and hEDS. Emphasis is placed on weight bearing exercises to enhance muscle control and proprioception while minimising strain on hypermobile joints. Progressive resistance training, guided by a skilled physiotherapist, helps prevent muscle weakness and optimise functional capacity.

 

Additionally, manual therapy techniques such as soft tissue mobilisation and joint mobilisation may complement exercise interventions, addressing musculoskeletal pain and stiffness. Education on joint protection strategies, activity modification, and pacing is integral to empower individuals with HSD and hEDS to manage their condition effectively.

Brilliant all round experience. After sustaining a marathon injury during training Wandsworth Physiotherapy managed to fit me in the next day and was back up and running within 2 weeks after three 30 minute sessions. Gave me exercises to go away and do in my own time too so felt like I was making the most of their and my time too.

Marina Williams

These guys are fantastic! Really quick to reply and they found me an appointment on the same day. I've since had regular treatments with Alessio who is excellent, and my torn IT band, shoulder and other ailments are much improved. Brilliant for both sports injuries and wellness.

Gerry Sweetland

Booked an appointment for the same day on a Saturday. Adele has been very welcoming and helpful, providing useful advice as well as efficient treatment. Great local clinic, will definitely come back and recommend.

Jean Reverdy

Steve was excellent. Long term/complex shoulder injury treated over a number of sessions - patient, curious and methodical. Great treatments and programme of exercises and I'm back to pain free swimming.

~ Nick Outlaw

I've been several times for several different problems and Steve has always been excellent. He listens really carefully and asks good questions to find out exactly what's wrong, and is very clear with follow-up exercises to continue the therapy at home. Highly recommend him!

Vanessa Harriss

Meet The Team

Andreas

Andreas

Senior Osteopath and Massage Therapist

Chara
Chara

Practice Manager

Christina

Christina

Senior Chartered Physiotherapist

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Foj William Olawo

Clinical Administrator & Receptionist

Jack

Jack

 Senior Podiatrist

kim-stanford
Kim

Advanced Senior Chartered Physiotherapist

Kitti Perlaki Profile

Kitti

Clinical Administrator & Receptionist

Melinda-Bernath

Melinda

Clinical Administrator & Receptionist

prapti
Prarthi

Chartered Physiotherapist

Rogel-Rios-Galeana

Rogel 

Chartered Physiotherapist

Screenshot-2022-10-17-at-17.43.15

Shreya

Senior Chartered Physiotherapist

steve-001

Steve

Clinical Lead Chartered Physiotherapist

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Sandra

Clinical Administrator & Receptionist

Wilson
Wilson

Senior Chartered Physiotherapist

Get In Touch

Request a call back - tell us about your problem… if you’re not sure what physiotherapy or osteopathy are and whether they can help your problem request a call back from one of our expert therapists.

We can listen to your problem and let you know if we can help... just leave your details using the contact form and we'll be in touch as soon as possible!

Please note: Enquiries are checked daily and will be responded to within 24 hours during clinic open hours.

Cancellation Policy

Please note we have a 24 hour cancellation policy. Please respect our therapists and give them more than 24 hours notice if you need to change or cancel an appointment. All appointments are secured with payment. All appointments cancelled within 24 hours of the start time or not attended will not be refunded. Failure to make payment on request will affect future appointments that we are able to offer you.
Thank you.

Telephone Reception

We have reception cover most of the time we are open, however if you can't get through it's quick and easy to book online. Please be aware that calls to Wandsworth Physiotherapy & Osteopathy are recorded to comply with ICO data protection and the recordings are stored for 3 months then deleted. All stored information is password protected.

Opening Hours

Monday 08:00 - 21:00
Tuesday 08:00 - 21:00
Wednesday 08:00 - 21:00
Thursday 08:00 - 21:00
Friday 08:00 - 20:30
Saturday 09:00 - 16:00
Sunday 10:00 - 15:00

No reception cover on Sundays - please book online, the door may be locked so ring the bell.

Annie Neill
Annie Neill
Rogel referred me to a consultant before treating me as he wanted to rule out a frozen shoulder before he started physiotherapy. His suspicion of my having a frozen shoulder was correct. This allowed me to get the correct diagnosis and corresponding treatment done quickly and efficiently.
Sophie Dolecki
Sophie Dolecki
I can't recommend this place and Physio Shreya enough! 10 weeks go I got referred to Wandsworth Physiotherapy by a friend after I was suffering with chronic neck and back pain. Shreya immediately found the cause, diagnosed me, and assured me of what the next steps would be. Not only does Shreya have healing hands, she continuously helped me mentally. After all of the advice, exercises, and dry needling, I am now pain free and able to return to my everyday activities (including exercise). Thank you Shreya, you are incredible!
Andreea Craciun
Andreea Craciun
This place is great! I got here with a really bad pain in my shoulder and neck and I got better really fast. I got treated by Shreya, who is AMAZING. Really good therapist, doing a mix of techniques to relieve pain, and also really empathetic. She id also specialised in sports, which means she was able to advise on how I can continue my regular workouts, despite my pain. I am always looking forward to my sessions here and I can see great progress with my injury. 10/10 would recommend!
Emma Morgan
Emma Morgan
Christina has been treating some issues with my neck, back and shoulders for 18 months now and she is the best physiotherapist I’ve ever had. She is a miracle worker with massage but also educates me about posture, injury prevention and the best forms of exercise and injury care. She is A-MAZING.
Anne-Sophie Houédé
Anne-Sophie Houédé
I've had about 8 sessions at Wandsworth Physiotherapy. Rogel did an amazing job and has been able to help me with the tendinopathy I've had for about 2 years! He created a plan especially for my own goal. I've had shockwave therapy, some exercises to do and advices on the sport I could do and when. Great place!
Kelly Hamer
Kelly Hamer
Rogel, your customer service is amazing! You took time to listen and understand issues. The treatment and exercises you provided were beneficial and helped me to continue exercising and compete at Hyrox. Thank you!
Daniel Maraffi
Daniel Maraffi
Was booked in with Rogel for a shoulder injury that has been a long term problem impacting my ability to do sport. Over 5 sessions I have seen significant improvement and have been given the tools to continue to get stronger. Hoping to book in with him again for a knee injury as well. Great guy and super knowledgeable!
Chris Storey
Chris Storey
Really friendly, knowledgeable staff - would definitely recommend!
Leanne Yates
Leanne Yates
Fantastic experience and can't recommend more! Rogel has been excellent and provided expert care.
Becks Page
Becks Page
Prarthi has been absolutely fantastic at helping me to recover from a shoulder injury over the last few months. My pain had dramatically reduced after the first session and she has continued to help throughout. She is extremely knowledgeable and has really helped me to understand the mechanics of my injury. I cannot recommend her enough! Thanks so much :)

338 Old York Road, SW18 1SS

0203 322 9455

Open 7 Days